Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Research Update, July 2023


ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the July 2023 Research Update, you’ll learn about the role genetic factors may play...

Posted in: Research, Update

2023 ALS Canada Research Forum: Cultivating connection and collaboration between the world of research and community experience


The landscape of ALS research is ever-changing, as researchers continue to increasingly make developments towards a common goal shared by both the research community and those personally impacted by ALS – to improve quality of life for people living with...

Posted in: Research, Stories

ALS Canada Advocacy Update – April-June 2023


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

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ALS Canada welcomes two new Board members in 2023/24


The ALS Society of Canada (ALS Canada) is pleased to welcome Dr. Chantelle F. Sephton from Quebec and Craig Storey from Prince Edward Island to our Board of Directors. ALS Canada’s Board of Directors is comprised of volunteers from diverse...

Posted in: Volunteers

ALS Canada thanks outgoing Board member for dedication to our shared cause


With admiration and gratitude, the ALS Society of Canada (ALS Canada) acknowledges the incredible contribution of our Board member, Dr. Christine Vande Velde, whose term has come to an end.     Dr. Vande Velde leaves her position on the Board...

Posted in: Volunteers

Making ALS a priority, today and tomorrow

ALS Society of Canada marks June’s ALS Awareness Month by shedding light on the nearly 4,000 Canadians living with ALS and their families


Today the ALS Society of Canada (ALS Canada) recognizes the start of ALS Awareness Month across the country. Join us as we raise awareness for amyotrophic lateral sclerosis (ALS), a devastating disease that affects nearly 4,000 Canadians currently diagnosed and...

Posted in: ALS Awareness Month