Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Applications open for ALS Canada Kevin Daly Bursary in support of Canadian students touched by ALS
May 16, 2023
Celebrating ALS community member Kevin Daly, a new bursary of $2,500 supports the financial needs of post-secondary students Toronto, ON – In partnership with the friends and colleagues of ALS community member Kevin Daly, the ALS Society of Canada (ALS... Read More
Posted in: Update
Qalsody (tofersen) has been approved in the United States and the European Union as a treatment targeting a genetic cause of ALS
May 3, 2023
On April 25, 2023, the U.S. Food and Drug Administration (FDA) approved Qalsody (tofersen) for the treatment of SOD1-ALS under the Accelerated Approval pathway. On May 30, 2024, the European Commission (EC) has granted marketing authorization for Qalsody (tofersen) under exceptional... Read More
ALS Canada Research Update, March 2023
March 28, 2023
ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the March 2023 Research Update, you’ll learn about the progress researchers have made in... Read More
Posted in: Research
ALS Canada and Brain Canada invest more than $1.4 million in ALS research grants
March 22, 2023
Nine projects to advance the ALS research landscape funded through ALS Society of Canada and Brain Canada partnership, with support from the Dr. Jean-Pierre Canuel Fund – SLA Québec. Toronto – The ALS Society of Canada (ALS Canada) and Brain... Read More
Posted in: Research
ALS Canada Advocacy Update – January- March 2023
March 15, 2023
This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,... Read More
Tagged:
Investing in the future change-makers of ALS research
The ALS Society of Canada and Brain Canada select latest Career Transition Award to support innovative ALS research
March 7, 2023
The ALS Society of Canada (ALS Canada) and Brain Canada are investing in the future of innovative scientists who are changing the landscape of amyotrophic lateral sclerosis (ALS) research and treatments in Canada. Together they are contributing a total of... Read More
Posted in: Research