Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
ALS Awareness Month brings access to treatments in Canada to the forefront
ALS Canada urges you to raise your hand in support of continuing to build Canada as a primary destination for ALS clinical trials
June 1, 2022
Toronto – The ALS Society of Canada (ALS Canada) joins the global ALS community in recognizing June as ALS Awareness Month. More than 3,000 Canadians live with amyotrophic lateral sclerosis (ALS), a neuromuscular disease that paralyzes people because the brain... Read More
Posted in: Advocacy
Raise your hand in support of continuing to build Canada as a primary destination for ALS clinical trials
With its world-class clinics and ALS specialists, Canada is well positioned to be a leader in clinical trial access.
June 1, 2022
History and context Canada has a rich history in ALS clinical trials. Though an ALS research community developed here alongside the rest of the world in the late 1970s and 1980s, Dr. Andrew Eisen at Vancouver General Hospital is widely... Read More
Discovery Grant gives lab capacity to deepen its focus on ALS
May 31, 2022
TDP-43 is a protein that lives in the nucleus of our cells. But in at least 97 per cent of ALS patients, TDP-43 somehow finds its way out of the nucleus – also called “mislocalization” – and starts to “clump”... Read More
Posted in: Research
2022 ALS Canada Research Forum fosters continued collaboration in the research community
May 26, 2022
Researchers are at a critical juncture in the study of ALS, with more pieces of the ALS biology puzzle available today than ever before. As labs continue to put the pieces together and identify new targets for therapeutics, work is... Read More
Posted in: Research
Novel collaborations could lead to more effective ways to treat patients with ALS
May 18, 2022
One of the first things that happens in neurodegenerative diseases is that neurons stop communicating with each other. And when neurons stop talking, they die. One hypothesis for this phenomenon is that the neurons get overly excited — so excited... Read More
Posted in: Research
Knowing the issues that matter to Ontario’s ALS Community: 2022 Ontario Election
May 11, 2022
Now more than ever it is important to know the issues that matter to you before you cast your ballot on Thursday, June 2nd , 2022. ALS Canada reached out to each major political party to get more details about... Read More
Posted in: Advocacy