Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
No stranger to adversity, Susheela faced ALS with courage
December 10, 2021
Advocacy and funding for research and community-based support services are things that were important to Susheela. She was featured in ALS Canada's eAdvocacy campaign this year which launched during ALS Awareness Month in June, and she's also featured in our... Read More
Posted in: Stories
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ALS Canada Advocacy Update – December 2021
December 9, 2021
This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,... Read More
Posted in: Advocacy Update
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Steve may have lost his singing voice, but he hasn’t lost hope
December 8, 2021
Steve Daly loved to belt out a tune for family and friends. The 50-year-old husband and father of four is known for his extroverted personality and, before being diagnosed with ALS, enjoyed playing hockey, riding road bikes with friends, cooking... Read More
Posted in: Stories
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Meeting an urgent need: Why it’s important now more than ever to give
December 6, 2021
“ALS doesn’t stop. Neither will we.” ALS researcher and ALS Canada Board Member Christine Vande Velde said these words at the start of the pandemic in reference to her team’s work in the lab, but they were quickly adopted as... Read More
Posted in: Stories
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Learning from COVID-19 to strengthen support for Ontarians living with ALS
November 22, 2021
Toronto, ON – The in-home support that the ALS Society of Canada provides to people living with ALS is highly valued by the community it serves and is something it had to evolve after the pandemic made physical distancing a... Read More
Posted in: Support & Services
MAKE YOUR VOICES HEARD: YOUR INPUT IS NEEDED FOR REVIEW OF NEW ALS THERAPY
November 10, 2021
Update: July 7, 2022: Following Health Canada's approval of ALBRIOZA (AMX0035) under a Notice of Compliance with Conditions (NOC/c), CADTH posted reimbursement recommendations for ALBRIOZA (AMX0035) in late June. ALS Canada provided feedback on the recommendations, bringing forward the perspectives... Read More
Posted in: Advocacy