Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Advocacy Update – June 2021


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

Posted in: Advocacy Update
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Sneak peek: What you can expect at the 2021 virtual Walk to End ALS


Can you believe it? We’re less than two weeks away from the virtual Walk to End ALS happening next weekend on Sunday, June 20! Although we can’t be together in-person again this year, we’ve gone the extra mile to unite...

Posted in: Events, Walk To End ALS

ALS Canada’s 2021 Research Forum: Bringing together the research and patient community virtually


Each year, ALS Canada convenes the brightest minds in ALS research across Canada at a two-day Research Forum to discuss their work and build capacity for more discoveries in this rapidly changing field. After the pandemic cancelled our plans to...

Posted in: Research

A single mom living with ALS has high hopes for Lou Gehrig Day


For Taya Jones, a single mother of three, there has been one silver lining during COVID-19, and that has been making memories with her children in the evenings, after work and school. “We’ve been isolated together for more than a...

Posted in: Stories

Could inflammation in this pathway provide a new target for ALS therapies?

Discovery Grant empowers Canadian team to examine the cGAS-STING pathway across a range of ALS models


A newly identified pathway has been piquing research interest around the world for its possible role in ALS. Recently, Canadian virologist Dr. Honglin Luo, in collaboration with her colleague Dr. Neil Cashman, discovered that an immune pathway known as cGAS-STING...

Posted in: Research
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How new drugs become approved and accessible to Canadians


Earlier this year, manufacturer Amylyx announced that it plans to pursue Health Canada approval for its AMX0035 therapy. We’ve updated the blog post we first published back in 2018 about how new drugs become accessible in Canada to help orient...

Posted in: Advocacy