Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

2024 ALS Canada Research Forum

Bringing together researchers and community members to move the needle on ALS treatment and innovation


Canada continues solidifying its reputation as a leader in ALS research innovation, as evidenced by the magnitude and quality of conversations, knowledge sharing, and relationship building at the 2024 ALS Canada Research Forum. From April 27 to 29, researchers, industry...

Posted in: Events, Research

National Volunteer Week: Every Moment Matters


This National Volunteer Week (April 14 – 20), ALS Canada wishes to recognize, celebrate, and thank our incredible volunteers who support our mission, raise funds, and help work toward a world free of ALS. This year’s theme is Every Moment...

Posted in: Volunteers

ALS Canada Advocacy Update – January-March 2024


This blog series is a place for the ALS community to learn about and stay updated on ALS Canada’s advocacy efforts as well as relevant developments within government. Please note that because ALS Canada advocates federally and provincially within Ontario,...

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Funding discoveries in ALS research: ALS Canada and Brain Canada announce more than $1.3 million for 2023 Discovery Grants


Eight projects receive funding to find answers and fuel discoveries in ALS research Toronto – In their effort to fund progress and innovation in amyotrophic lateral sclerosis (ALS) research, the ALS Society of Canada (ALS Canada) and Brain Canada are...

Posted in: Research

ALS Canada and Brain Canada invest in future leader of ALS research with 2023 Career Transition Award


Quebec researcher receives $250,000 over three years to investigate gene-based research to treat ALS Toronto – The ALS Society of Canada (ALS Canada) and Brain Canada are dedicated to a shared mission to advance amyotrophic lateral sclerosis (ALS) research. Together,...

Posted in: Research

ALS community calls on the Ontario government to invest $6.6 million in Budget 2024 to address urgent disparities in access to ALS services and care


Implementation of the Ontario Provincial ALS Program is critical for addressing the urgent needs of Ontarians living with ALS and their families Toronto – Today, people living with amyotrophic lateral sclerosis (ALS) and their caregivers join the ALS Society of...

Posted in: Advocacy