Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Canadians living with ALS unite to CAPTURE ALS


Amyotrophic lateral sclerosis (ALS) is a complex disease with varying symptoms and severity for people affected. Due to its heterogeneity, diagnosing the disease can be challenging and finding effective treatments can also be difficult. CAPTURE (Comprehensive Analysis Platform To Understand,...

Posted in: Research

ALS Society of Canada recognizes innovation and need for expedited funding in new Acceleration Grant Program


Funding for first two projects to total $200,000 Toronto – Amyotrophic lateral sclerosis (ALS) is a disease that can progress with startling swiftness. The ALS Society of Canada (ALS Canada) recognizes the need to move quickly in funding promising research...

Posted in: Research

Ontario Provincial ALS Program: Enhancing care and quality of life of people living with ALS


In Canada, what the provincial health care systems provide does not always match the needs of people living with ALS. This statement rings true for Ontario, where the current ALS care and support landscape in the province presents people living...

Posted in: Advocacy

You can support ALS Canada & enjoy tax benefits!


As we bid farewell to 2023, we want to take a moment to celebrate YOU. Your dedication throughout this month, and indeed the entire year, has been nothing short of inspirational. As a community, you have rallied together to show...

Posted in: Fund Development

Messages from our community


While it is a special time for many, the holiday season can also be especially difficult for people grieving the loss of someone close to them. We know this to be true in the ALS community because so many of...

A letter from Mehboob – “You’ve given me strength and hope”


My name is Mehboob, and I’d like to share my story with you. And I want to say thank you. In late 2020, life took an unexpected turn when I was diagnosed with ALS. Once the provider of medical care...