Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
The impact of donor dollars on ALS research in Canada
Investing with care and consideration
August 30, 2018
The result of the 2014 Ice Bucket Challenge gave the ALS community a tremendous gift: awareness and unprecedented investment in ALS research. Thanks to the viral fundraising phenomenon that year, along with matched funds from Brain Canada (through the Canada... Read More
Posted in: Research
A Community Connected
2017 Annual Report to the community
August 17, 2018
In 2014, the Ice Bucket Challenge gave hope to people and families living with ALS – hope that one day there would be a cure for this terminal disease. With the Ice Bucket Challenge came an immense responsibility to invest... Read More
Posted in: Update
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Every August Until A Cure 2018
August 1, 2018
"Every August until a cure." These five words were first spoken by ALS patient and advocate, Pat Quinn, upon accepting a Webby Award for his part in creating the Ice Bucket Challenge. The social media phenomenon raised millions of dollars... Read More
Posted in: Research
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The emotional challenges of ALS
Below the surface
July 9, 2018
When someone hears about ALS, the first thought is often about the loss of physical function; for example, the progressive inability to walk, talk, eat, swallow, and eventually, breathe. Losing these functions one by one can be profoundly difficult on... Read More
Posted in: Stories
Wrapping up ALS Awareness Month
Who do you give for?
July 5, 2018
ALS Awareness Month is all about telling stories. Over the course of the month of June, people and families affected by ALS shared their personal stories about why they gave and who they gave for. On June 27, 2018, Dr. David... Read More
Posted in: Events
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Mother and daughter caregiving team reach out with love and compassion
June 28, 2018
When Emma and Tom Belen decided to share the tragic news of Tom’s ALS diagnosis with their two daughters at a Sunday lunch gathering in March 2011, their eldest daughter, Stephanie, surprised them both. She decided to announce her pregnancy... Read More
Posted in: Events
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