Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Radicava (edaravone): Make your voice heard
June 11, 2018
Updated July 18, 2018 The Canadian Agency for Drugs and Technologies in Health (CADTH) recently posted an open call for patient input on Radicava (edaravone). This is an additional step along the approval and affordability pathway for the drug, which... Read More
Posted in: Advocacy
Giving back to stop ALS from taking more
Kitchener/Waterloo WALK for ALS
June 8, 2018
According to Brian Heaney, the Kitchener/Waterloo WALK for ALS is the “best day of the year.” As a dedicated participant attending the WALK for his eighth year in a row, Brian has a robust understanding of what the WALK for... Read More
Posted in: WALK for ALS
ALS Research Update, June 2018
June 7, 2018
ALS research is at a time of unprecedented advancement. Our biggest hope is to stop ALS from stealing dreams, abilities, and lives – and researchers are closer than they’ve ever been to making this a reality. With such unprecedented momentum,... Read More
Posted in: Research
Long-time altruist lends his voice to ALS cause
Barrie WALK for ALS
June 5, 2018
Throughout his career, Vincent Quinn has worked with people living with disabilities, tended to social justice issues for homeless youth and adults, and facilitated support groups for people who have lost someone to suicide. Today, he volunteers his time to... Read More
Posted in: WALK for ALS
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Acting against everything that ALS takes
June 4, 2018
June is ALS Awareness Month in Canada. And while we are only four days in, already there has been lots of momentum behind our shared cause: MPs have made statements in the House of Commons; landmarks have been lit in... Read More
Posted in: Events
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Almost 30 years living with ALS and volunteering just as long
Sault Ste. Marie WALK for ALS
May 31, 2018
ALS usually moves at a rapid pace but Sharon Carson has been living with the disease for almost 30 years. It started with loss of control in her hands and arms making it difficult for her to manage doorknobs, seatbelts,... Read More
Posted in: WALK for ALS
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