Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

ALS Canada Webinar Series: Clinical Trials
August 3, 2017
Many people living with ALS and their families want to know how scientific discoveries move from basic research in the laboratory through different phases of clinical trials using human volunteers. They also want to understand why clinical research is required... Read More

From Inquiry to Insight: Dr. Michael Strong
August 2, 2017
Updated October 20, 2017 Dr. Michael Strong has spent his career as a clinician scientist researching ALS with a determined curiosity and keen attention to new learning in the field. Over the years, people living with ALS and their families... Read More

Skin models for the study of ALS
August 1, 2017
Updated October 20, 2017 Bastien Paré from l'Université Laval has been studying ALS for more than five years. We spoke with him about his research and the future of ALS in Canada. Can you tell us about your ALS Canada-funded research?... Read More

Every August Until A Cure
August 1, 2017
"Every August until a cure." These five words were first spoken by ALS patient and advocate Pat Quinn upon accepting a Webby Award for his part in creating the Ice Bucket Challenge. The social media phenomenon and global sensation raised... Read More

Learning more about how gene mutations can cause ALS
July 31, 2017
Updated October 20, 2017 In the late 1980s, Dr. Neil Cashman was completing a neurology fellowship in ALS at the University of Chicago. At that time, little was known about the genetics or biology of ALS and Dr. Cashman became... Read More

For Tom and Denis, the Ice Bucket Challenge is Personal
July 31, 2017
Like many people, Denis and his husband Tom were familiar with the Ice Bucket Challenge that became a social media phenomenon in the summer of 2014 – but they never imagined they would one day have a personal motivation to... Read More