Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.

Finding Comfort in Creativity


When life hands you an ALS diagnosis, the fear of the unknown can often prevent you from embracing the present. This is something Mary-Anne experienced first-hand three years ago, when she was diagnosed with ALS. During a vacation in Puerto...

Posted in: Stories

Eddy is Living Life on his Terms


When Eddy was diagnosed with ALS in 1992, he was given three to five years to live. His symptoms began with a weakness in his left hand that gradually progressed throughout his body. “Over the next 15 months I was...

Posted in: Stories

Seizing Today with Passion and Humour


Judy is the kind of woman who can make you smile in any situation. With a zest for life, unwavering positivity and a witty sense of humour, Judy is an inspiration for what it means to seize today. At first...

Posted in: Stories

Carol: Living, Loving and Laughing Today


Diagnosed with ALS in September 2013 at the age of 41, Carol has surpassed the two to three year life expectancy that was originally given to her by her neurologist. Since then, she has struggled with degenerating muscle function every...

Posted in: Stories

Improving support for people and families living with ALS


Updated November 28, 2017 When you are living with or caring for someone with ALS, there are countless challenges and changes to consider. Through donor support, ALS Canada helps people and families in Ontario to navigate the options available through...

Posted in: Support & Services

A Walk for Remembrance and Awareness


Last month, John Scarborough and his two brothers completed their “Long Walk Home.” The 459km walk was a way to honour their sister and John’s first wife who both died of cancer, and to remember Rita, John’s second wife who...

Posted in: Stories