Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
National Volunteer Week | Debbie Damario and Ashley Dunseith
Niagara WALK for ALS
April 18, 2018
Today we are profiling two volunteers from the Niagara WALK for ALS: Debbie Damario and Ashley Dunseith. Both Debbie and Ashley have lost a loved one to ALS. Now, they dedicate their time to the Niagara WALK for ALS as... Read More
Posted in: Volunteers
Tagged:
National Volunteer Week | Judith Malvern
York Region WALK for ALS
April 17, 2018
For day two of National Volunteer Week, we’re introducing you to Judith Malvern, a committee member for the York Region WALK for ALS. When her sister passed away from ALS, Judith felt she needed a way to pay it forward... Read More
Posted in: Volunteers
Tagged:
Shining a light on volunteerism across the board
Ron Foerster, Chair of the ALS Canada Board of Directors
April 16, 2018
As a charitable organization, ALS Canada is fortunate to have a legion of volunteers who dedicate their time and talents to our shared cause. Each one of these volunteers has a unique story and experience that brought them to the... Read More
Posted in: Volunteers
Tagged:
How new drugs become approved and available to Canadians
April 9, 2018
With the news that manufacturer MT Pharma is pursuing the regulatory channels necessary to bring the drug edaravone to Canada, the ALS community in this country finds itself facing the possibility of a second treatment option nearly 20 years after... Read More
Posted in: Advocacy
Become a monthly donor and contribute to a future without ALS
March 28, 2018
If you’ve ever been touched by ALS, you understand how devastating the disease can be. A disease that takes away someone’s ability to walk, talk, eat, swallow, and eventually breathe, ALS has no cure and the majority of people diagnosed... Read More
Posted in: Fund Development
Can insights about why eye muscles are resistant to ALS help preserve function in other muscles?
March 21, 2018
Muscles are made of separate fibres bundled together that receive signals from motor neurons, causing the muscles to contract or relax. Motor neurons connect to individual muscle fibres connect to at tiny places called neuromuscular junctions where specialized glial cells... Read More
Posted in: Research