Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Fighting for more time – to dream, to live, to be with loved ones
June 20, 2019
Karen Van Luven, 53, and her mom, 84, both get around their apartment using walkers. Karen moved in to her mom’s apartment nine years ago to be her caregiver. Her mom was experiencing mobility issues and could no longer walk... Read More
Walking in memory fuels hope and strengthens community
June 18, 2019
Lise Michaud’s brother, Eddy Lefrançois, made every day count. He lived nearly three decades with ALS, proudly defying the odds and outliving his “expiry date” (EXP: 04.97) which he tattooed on the inside of his forearm as a reminder to... Read More
Coach Sunshine’s ‘never quit attitude’ can help change the future of ALS
June 13, 2019
At the rink where he has coached boys’ ice hockey for more than 10 years, Adam Welburn-Ross, 43, is fondly known as “Coach Sunshine.” He wears his positivity as a badge of honour and now that he is living with... Read More
Posted in: Walk To End ALS
Community spirit ignites passion to increase ALS awareness
June 6, 2019
An active mother of three young children, Stephanie Christiansen Hall wants people to know she has ALS – but she wants everyone to know that her disease is only part of her story. Apart from living with ALS, Stephanie is... Read More
Finding inspiration from the small things makes a big difference
June 3, 2019
Brian Bower has always been passionate about sports. Above all, he is an ardent fisherman, known on occasion to snatch 15 minutes from his day for the joy of casting a line in one of the abundant waterways in and... Read More
It’s about time to change the reality of ALS
May 30, 2019
ALS is always about time. How much time do I have? How much time until I can’t hug my children? How much time until I can no longer walk, or eat, or breathe? It’s about time we change that. It’s... Read More
Posted in: Advocacy