Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
“Team Ed” a demonstration of love and support at the Walk to End ALS
May 9, 2019
Entering his 60’s, Ed Parcells was in the best shape of his life. He ran most mornings, cycled 60-100 km a few times a week, and played hockey on a regular basis. At the time, he and his wife Ev... Read More
Partnering with the ALS community on a new assessment tool
May 8, 2019
When someone has a disease, like ALS, their quality of life is affected in many different ways as the disease progresses. “Quality of life can mean many different things to different people. For some, it means functional abilities, like walking... Read More
Posted in: Research
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Augie’s Quest and ALS Research in Canada
Orangetheory Fitness Canada dedicates fundraising campaign to ALS research
April 26, 2019
For the second year in a row, Orangetheory Fitness is giving its members (and the community) a way for you to make an impact while getting in a good workout. It’s a win-win! On May 1, 2019, Orangetheory Fitness is... Read More
Posted in: Advocacy
Can new understandings about RNA granules explain types of ALS?
April 24, 2019
Over the past several years, ALS researchers have learned that little structures in motor neurons called RNA granules are one of the most common biological differences in people with ALS and frontotemporal dementia compared to people without those diseases. These... Read More
Posted in: Research
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Does a previously unstudied protein play an important role in ALS?
April 18, 2019
A protein called TDP-43 is usually found inside the cell nucleus where it plays an essential role in regulating many cellular processes. But in 97 per cent of people with ALS and nearly half of the people with frontotemporal dementia,... Read More
Posted in: Research
Celebrating Your Impact: ALS Canada Volunteers
April 12, 2019
In celebration of 2019 National Volunteer Week #NVW2019, you’ve heard from volunteers who support the work of ALS Canada in different ways. You’ve read about what they do, why they do it and about memorable experiences they’ve made along the... Read More
Posted in: Volunteers