Welcome to the ALS Canada blog where you’ll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected. For content in French, please refer to the “Français” category in the main menu.
Learning about ALS for the first time: young people share their perspectives
May 29, 2019
Kyla and Vaughn visited their Great Uncle Murray in Thunder Bay a couple summers ago, making the trip all the way from Colorado. It was their first time meeting someone with ALS, and they were both affected deeply by the... Read More
Posted in: Stories
Music and resiliency: lessons from my father
May 29, 2019
Talking about his dad’s ALS diagnosis, Connor Stratton, 17, says, “It’s a hard thing to understand at times, but it’s good to try to look at the bright side because my dad still has his spirits up. He’s still happy... Read More
Reinforcing spiritual values through community connection
May 29, 2019
Since receiving his ALS diagnosis in February 2018, Mark Ianniello's life has changed in profound ways. He is a 49-year-old father to three teenagers and can no longer work to help support his family. ALS has affected his speech and... Read More
Offsetting the loneliness and isolation of an ALS diagnosis with love and support
May 23, 2019
For the past 40 years, Dale Hodgins has been saving lives as a paramedic and volunteer firefighter in Kingston, Ontario. In December 2018, he was diagnosed with ALS – a disease he was already familiar with through his work. As... Read More
Can the key to slowing ALS progression be found in the immune cells of the brain?
May 15, 2019
Microglia are the primary immune cells of the brain and spinal cord. They patrol the central nervous system to track down and dispose of unwanted cellular debris and dead neurons, as well as organisms like bacteria and viruses that pose... Read More
Posted in: Research
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Positive and pragmatic – an approach for one family facing the realities of ALS
May 15, 2019
According to Kevin, there’s one word that sums up ALS: a thief. “ALS is a thief - and a remorseless one at that,” he explains in writing. Now that he can no longer speak, he uses eye gaze technology to type... Read More